Consumers x Healthcare Professional Engagement
Tuesday July 15th
12:30 – 13:00 AEST
On-site (Brisbane Convention & Exhibition Centre - Room B1 + B2)
As part of the World Bronchiectasis Conference, this session is intended to be an informal opportunity to create a shared space for clinicians, researchers, and consumers to engage in open and meaningful dialogue. Consumers (i.e. patients living with Bronchiectasis and/or their parents/carers) are encouraged to share their lived experience perspectives and reflect on
- The challenges of living with and managing bronchiectasis
- The opportunities they see for more consumer-centric care and disease management
- The interactions within the health system – what’s working well and where gaps remain
The conversation is a valuable opportunity for health professionals to hear directly from those with lived experience, helping inform a more responsive, inclusive and accessible care.  You’re invited to share your story and connect with others. Feel free to drop in anytime between 11:30AM and 1:00PM on Tuesday the 15th of July in On-site (Brisbane Convention & Exhibition Centre – Room B1 + B2).Â
Bronchiectasis Research Priority Setting Workshop – Consumer Session
Wednesday July 16th
13:30 – 15:30 AEST
On-site (Brisbane Convention & Exhibition Centre - Room B1 + B2) & Live Streamed
Registration is now closed for virtual attendance
Help shape the future of bronchiectasis research by joining the Consumer Research Priority Setting Workshop, taking place 13:30 – 15:30 AEST, Wednesday 16 July 2025 during the World Bronchiectasis Conference.
This Research Priority Setting Workshop will bring together people living with bronchiectasis, carers, and clinicians to identify and prioritise the most important unanswered questions and evidence gaps.
Whether you’re attending in person or joining online, your voice is vital.
This workshop is part of a global initiative coordinated with leading organisations and researchers to ensure that health research funders and decision-makers are guided by the lived experiences and practical needs of the bronchiectasis community.
Consumer Session I – Wednesday July 16th
16:00 – 18:00 AEST
On-site (Brisbane Convention & Exhibition Centre - Room B1 + B2) & Live Streamed
AI-generated subtitles will be available in Italian, Spanish, Portuguese, French, and German for virtual participants.
Welcome & introductions
16:00–16:05 – Mr Harry Patsamanis – General Manager – Consumer Programs – Lung Foundation Australia
Living with NTM: Breakthrough therapies and How to Manage the Journey
16:05–16:15 – Rachel Thomson (Australia)
16:15–16:25 – Shannon Kasperbauer (USA)
Q&A
16:25–16:35 – Andrew Burke (Australia)
Getting to Know PCD: From Early Clues to Cutting-Edge Treatments
16:35–16:45 – Claire Hogg (UK)
16:45–16:55 – Michael Loebinger (UK)
Q&A
16:55–17:05 – Moderator – Philip Robinson (Australia)
Living Well with Bronchiectasis: Nutrition, Airway Clearance & Mental Health
17:05–17:15 – Felicity Loel (Australia)
17:15–17:25 – Kathleen Hall (Australia)
17:25–17:35 –   Mark Brooke (Australia)
Q&A
17:35–17:50 – Moderator – Rebecca Keating (Australia)
Closing / audience thank you / chair wrap-up
17:50–17:55 – Mr Harry Patsamanis – General Manager – Consumer Programs – Lung Foundation Australia
Consumer Session II – Thursday July 17th
09:00 – 11:00 AEST
On-site (Brisbane Convention & Exhibition Centre - Room B1 + B2) & Live Streamed
AI-generated subtitles will be available in Italian, Spanish, Portuguese, French, and German for virtual participants.
Welcome & introductions
09:00–09:05 – Mr Harry Patsamanis – General Manager – Consumer Programs – Lung Foundation Australia
Caring for Kids with Bronchiectasis: From Diagnosis to Growing Independence
09:05–09:15 – Danielle Wurzel (Australia)
09:15–09:25 – Ahmed Kantar (Italy)
Q&A
09:25–09:35 – Moderator – Bernadette Prentice (Australia)Â
Evidence-Based Best Practice and Treatment Approaches
09:35–09:45 – Timothy Aksamit (US)
09:45–09:55 – Michal Shteinberg (Israel)
09:55–10:05 – Charles Feldman (South Africa)
Q&A
10:05–10:20 – Moderator – Megan Rees (Australia)Â
A New Era Begins: Better Care, Brighter Futures
10:20–10:30 – James Chalmers (UK)
10:30–10:40 – Doreen Addrizzo-Harris (US)
Q&A
10:40–10:50 – Moderator – Ruth Tal-Singer (US)
Closing / audience thank you / chair wrap-up
10:50–11:00 – Mr Harry Patsamanis – General Manager – Consumer Programs – Lung Foundation Australia
Global video showcase initiative “I hope …â€
We are preparing a global video showcase to share the stories of people with lived experience of Bronchiectasis with delegates of the WBC 2025 scientific program. This international audience will include multidisciplinary healthcare and research professionals.
We need your help to embed the consumer voice and messages of hope throughout WBC 2025. We inviting patients and carers impacted by bronchiectasis from around the world to film a short, 30 – 60 second video of themselves, summarising their bronchiectasis story, including an ‘I hope’ statement.
From your individual videos, we will edit together a longer video showcase to share at WBC 2025. This will set the tone for the scientific program. We want to embed messages of hope throughout the program, and remind delegates that patients and their families are the focus and reason we have gathered. This will serve to emphasise the importance of the international bronchiectasis community’s work, and the difference it makes in the lives of patients and carers. Some of the videos will be used before the Conference to promote the initiative and raise awareness about the Conference through social media, newsletters and the patient website.
Learn more about this initiative (coming soon)Â
Download the media consent form (coming soon)
