Consumer Session I & II
(Patients Theatre)
LFA will organize a working group of consumers (patients) to identify which conference topics are most relevant and of interest. Based on their feedback, we will arrange 4 hours of presentations, where conference speakers will present the chosen topics (both on-site and online to consumers.
(This initiative could be concluded with a panel of consumers on the topic “Maintaining hope when faced with a difficult diagnosis”)
Scheduling:
Wednesday, July 16th, 16:00 – 18:00 AEST
(Time Eurozone / Africa / Asia friendly)
Thursday July 17th , 09:00 – 11:00 AEST
(Time Americas zone friendly)
Bronchiectasis Priorities Setting Workshop
Bronchiectasis Priorities Setting Workshop is an LFA initiative, bringing patients, carers and clinicians together for the definition of priorities in the pathology management. The initiative identify and prioritise unanswered questions or evidence uncertainties that they agree are the most important, so that health research funders are aware of the issues that matter most to the people who need to use the research in their everyday lives.
LFA will work with their Consumer Advocacy Group in Australia and New Zealand with the support of ELF and COPD Foundation PAGs to develop a two Surveys addressed both to Healthcare Professionals and Consumers. The preliminary data from the Survey will be analysed and discussed during the WBC25 Workshops.
Scheduling of the meeting during the conference:
Wednesday July 16th, 13:30 – 15:30 AEST
Global video showcase initiative “I hope …”
We are preparing a global video showcase to share the stories of people with lived experience of Bronchiectasis with delegates of the WBC 2025 scientific program. This international audience will include multidisciplinary healthcare and research professionals.
We need your help to embed the consumer voice and messages of hope throughout WBC 2025. We inviting patients and carers impacted by bronchiectasis from around the world to film a short, 30 – 60 second video of themselves, summarising their bronchiectasis story, including an ‘I hope’ statement.
From your individual videos, we will edit together a longer video showcase to share at WBC 2025. This will set the tone for the scientific program. We want to embed messages of hope throughout the program, and remind delegates that patients and their families are the focus and reason we have gathered. This will serve to emphasise the importance of the international bronchiectasis community’s work, and the difference it makes in the lives of patients and carers. Some of the videos will be used before the Conference to promote the initiative and raise awareness about the Conference through social media, newsletters and the patient website.
Learn more about this initiative (coming soon)
Download the media consent form (coming soon)
