Activites
Activites
Consumer Meeting (Patients Theatre)
LFA will activate their working group of consumers (patients) to identify, among the topic of the conference, the ones which are of most importance and interest for consumers.
Based on that selection, overall 4 hours of presentations will be organised where speakers of the conference will be presenting to the consumers on-site and on-line the selected topic.
This initiative could be concluded with a panel of consumers on the topic
“Maintaining hope when faced with a difficult diagnosis”
Scheduling:
Wednesday, July 16th, 16:00 – 18:00 (Time Eurozone / Africa / Asia friendly)
Thursday July 17th 09:30 – 11:30 (Time Americas zone friendly)
James Lind Alliance Research Priority Setting in Bronchiectasis and NTM
The James Lind Alliance (JLA) is a non-profit making initiative bringing patients, carers and clinicians together in JLA Priority Setting Partnerships (PSPs). The JLA PSPs identify and prioritise unanswered questions or evidence uncertainties that they agree are the most important, so that health research funders are aware of the issues that matter most to the people who need to use the research in their everyday lives.
LFA will work with their Consumer Advocacy Group in Australia and New Zealand and possibly with consumers (patients) of the ELF and COPD Foundation to develop a James Lind Alliance Research Priority Setting Partnership on Bronchiectasis and NTM during the period preceding the conference.
The outcome will be discussed by the group (on-site and on-line) during the conference and presented during the Session X of the conference.
The group aim is also to produce a publication on the topic
Scheduling of the meeting during the conference
Tuesday, July 15th 16:00 – 18:00 (including European patients on line) – Consumer Workshop
Global video showcase initiative “I hope …”
We are preparing a global video showcase to share the stories of people with lived experience of Bronchiectasis with delegates of the WBC 2025 scientific program. This international audience will include multidisciplinary healthcare and research professionals.
We need your help to embed the consumer voice and messages of hope throughout WBC 2025. We inviting patients and carers impacted by bronchiectasis from around the world to film a short, 30 – 60 second video of themselves, summarising their bronchiectasis story, including an ‘I hope’ statement.
From your individual videos, we will edit together a longer video showcase to share at WBC 2025. This will set the tone for the scientific program. We want to embed messages of hope throughout the program, and remind delegates that patients and their families are the focus and reason we have gathered. This will serve to emphasise the importance of the international bronchiectasis community’s work, and the difference it makes in the lives of patients and carers. Some of the videos will be used before the Conference to promote the initiative and raise awareness about the Conference through social media, newsletters and the patient website.
Learn more about this initiative (coming soon)
Download the media consent form (coming soon)