Association and Patient Village
Association and Patient Village
Join us at the Association & Patient Village – a dedicated space where you can discover patient advisory groups, connect with supportive communities, and learn about initiatives designed to improve your daily life and care.
Endorsements
Endorsements
Organising association | |
European Bronchiectasis Registry - EMBARChttps://www.bronchiectasis.net/ United Kingdom | |
In association with | |
Biomedical Research in Endstage And ObsTructive Lung Disease Hannoverhttps://www.breath-hannover.de/en/nc.html Germany | |
Hannover Medical Schoolhttps://www.mhh.de/en/ - | |
The Prospective German Non CF Bronchiectasis Patient Registryhttps://bronchiektasen-register.de - | |
Programme partners | |
Association of Chartered Physiotherapists in Respiratory Carehttps://www.acprc.org.uk/ United Kingdom | |
Associazione Riabilitatori dell’Insufficienza Respiratoriahttps://www.arirassociazione.org/ - | |
Beat-PCDhttp://beat-pcd.squarespace.com United Kingdom | |
Bronchiektasen e.V. Deutschlandhttps://bronchiektasen.org/ Germany | |
Child-BEAR-Nethttps://www.improvebe.org/ - | |
ERN-LUNGhttps://ern-lung.eu/ - | |
European Lung Foundationhttps://europeanlung.org/en/ - | |
German Respiratory Society - DGPhttps://www.pneumologie.de/en Germany | |
Gesellschaft für Pädiatrische Pneumologie e.V. - GPPhttps://www.paediatrische-pneumologie.eu/ Germany | |
Non-Tuberculous Mycobacteria Network European Trialsgrouphttps://www.ntmnet.org/ Belgium | |
Sociedad Espanola de Neumologia y Cirugia Toracicahttps://separ.es/ Spain | |
Société de Pneumologie de Langue Française - SPLFhttps://splf.fr/ France | |
International Societies | |
European Cystic Fibrosis Societyhttps://www.ecfs.eu/ - | |
European Forum for Research & Education in Allergy & Airways Diseaseshttps://www.euforea.org/ - | |
International Primary Care Respiratory Grouphttps://www.ipcrg.org/ - | |
Pulmonary Hypertension Association Europehttps://www.phaeurope.org/ - | |
National Societies | |
Asociación Argentina de Medicina Respiratoriahttps://www.aamr.org.ar/ Argentina | |
Asociación Hondureña de Neumología y Cirugía de Tóraxhttps://www.facebook.com/p/Asociaci%C3%B3n-Hondure%C3%B1a-de-Neumolog%C3%ADa-y-Cirug%C3%ADa-del-T%C3%B3rax-100063552093445/ Honduras | |
Austrian Society of Internal Medicinehttps://www.oegim.at/ Austria | |
Austrian Society of Pneumology - ÖGPhttps://www.ogp.at/ Austria | |
Belgian Respiratory Societyhttps://belgianrespiratorysociety.be/fr Belgium | |
Canadian Thoracic SocietyCanada | |
Ethiopian Thoracic Societyhttps://ethiopianthoracicsociety.org/ Ethiopia | |
Hellenic Thoracic Societyhttps://www.hts.org.gr/ Greece | |
Hong Kong Thoracic Societyhttps://hkts.hk/ China | |
Hungarian Respiratory Society - MTThttps://tudogyogyasz.hu/ Hungary | |
Indian Chest Societyhttps://www.myicsorg.net/ India | |
Irish Thoracic Societyhttp://irishthoracicsociety.com/ Ireland | |
Israel Society of Pulmonologyhttp://www.ipus.org.il/ Israel | |
Japanese Respiratory Societyhttps://www.jrs.or.jp/ Japan | |
Macedonian Respiratory Societyhttp://makrespir.mk/Default.aspx?lng=2 - | |
Malaysian Thoracic Societyhttps://www1.mts.org.my/ Malaysia | |
Palestinian Thoracic Societyhttps://palthorax.org/ - | |
Pan African Thoracic Societyhttps://panafricanthoracic.org/ - | |
Scottish Thoracic Societyhttps://www.scottishthoracicsociety.org.uk/ United Kingdom | |
Slovenian Respiratory Societyhttps://www.zps-slo.si/en/home/ Slovenia | |
Sociedad de Medicina Interna del Uruguayhttps://medicinainterna.org.uy/ Uruguay | |
Sociedad Peruana de Neumologiahttps://www.spneumologia.org.pe/ - | |
Sociedad Uruguaya de Neumologíahttps://suneumo.org Uruguay | |
Sociedade Paulista de Pneumologia e Tisiologiahttps://sppt.org.br/ - | |
Sociedade Portuguesa de Medicina Internahttps://www.spmi.pt/ Portugal | |
Società Italiana di Pneumologiahttps://www.sipirs.it/ Italy | |
Societatea Română de Pneumologiehttps://www.srp.ro/ Romania | |
South African Thoracic Societyhttps://pulmonology.co.za/ South Africa | |
Turkish Respiratory Societyhttps://solunum.org.tr/eng/ Türkiye | |
Turkish Thoracic Societyhttp://www.toraks.org.tr/en/ Türkiye | |
Vietnam Respiratory Societyhttps://hoihohapvietnam.org/ Viet Nam | |
Registries & Research Networks | |
BE-Chinahttp://www.chinabronchiectasis.com/ China | |
Bronchiectasis in African Children: Prevalence, Aetiology and Clinical spectrum- | |
KMBARCRepublic of Korea | |
The UK bronchiectasis network and biobankhttps://bronchiectasisuk.hicservices.dundee.ac.uk/ United Kingdom | |
Specialist & Professional Associations | |
Association des Jeunes Pneumologueshttps://ajpo2.org/www/ France | |
Association of Respiratory Nurseshttps://arns.co.uk/ Australia | |
Bangladesh Society of Allergy & ImmunologyBangladesh | |
Deutsche Gesellschaft für Allergologiehttps://dgaki.de/allgemeiner-kongresskalender Germany | |
French Cystic Fibrosis Society - Société Française de la Mucoviscidosehttps://muco-cftr.fr/la-societe-francaise-de-la-mucoviscidose/ France | |
German Society of Allergologyhttps://aeda.de/ Germany | |
Groupe d’Endoscopie Thoracique et Interventionnel Francophone- | |
Indian Association for Bronchologyhttps://www.iabronchology.org/ India | |
Japanese Society of Pediatric Pulmonologyhttps://jspp1969.jp/ Japan | |
NTM Network UKhttps://www.ntmnetworkuk.com/ United Kingdom | |
Physio Austriahttps://www.physioaustria.at/ Austria | |
Società Italiana di Malattie Infettive e Tropicalihttps://www.simit.org/ Italy | |
Società Italiana per le Malattie Respiratorie Infantilihttps://www.simri.it/ Italy | |
Società Italiana per lo studio della Fibrosi Cisticahttps://www.sifc.it/ Italy | |
The Japanese Society for Tuberculosis and Nontuberculous Mycobacteriosishttps://www.kekkaku.gr.jp/ Japan | |
Patient & Lung Health Organisations | |
Alpha-1 Europe Alliancehttps://alpha1europe.org/ - | |
Alpha-1 UKhttps://alpha1.org.uk/ United Kingdom | |
Alpha1 Deutschland e.V.https://alpha1-deutschland.org/ Germany | |
Asociación Alfa-1 de Españahttps://alfa1.org.es/ Spain | |
Asociación Española de Pacientes y Cuidadores con Bronquiectasiashttps://www.linkedin.com/company/aebropacientes?trk=public_post_feed-actor-name Spain | |
Aspergillosis Trusthttps://www.aspergillosistrust.org/ - | |
Associação Brasileira de Discinesia Ciliar Primáriahttps://dcpbrasil.org/ Brazil | |
Associazione Italiana Bronchiettasiehttps://bronchiettasie.org/ Italy | |
Asthma + Lung UKhttps://www.asthmaandlung.org.uk/ United Kingdom | |
Belgian Lung Foundationhttps://belgian-lungfoundation.be/en/lung-fact/introduction/ Belgium | |
Bronchiectasis and NTM Associationhttps://www.bronchiectasisandntminitiative.org/ United States of America | |
Cure4 Cystic Fibrosishttps://www.cure4cf.org/ Australia | |
Cystic Fibrosis Australiahttps://www.cysticfibrosis.org.au/ Australia | |
Federación Española de Asociaciones de Pacientes Alérgicos y con Enfermedades Respiratoriashttps://fenaer.es/ Spain | |
German Lung Foundation - Deutsche Lungenstiftung e. V.https://www.lungenstiftung.de/ Germany | |
Global Allergy & Airways Patient Platformhttps://gaapp.org/ - | |
Hong Kong Lung Foundationhttp://hklf.org/ China | |
Kartagener Syndrom & PCD e.V.https://www.pcd-ks.info/ Germany | |
Latin Health Leadershttps://latinhealthleaders.org/ - | |
Linshom - The Association for Lung Patients in Israelhttps://lungs.org.il/ Israel | |
Lung Foundation Australiahttps://lungfoundation.com.au/ Australia | |
MNT Mon Poumon Mon Airhttps://www.mntmonpoumonmonair.org/ France | |
NTM Info & Researchhttps://ntminfo.org/ United States of America | |
PCD Foundationhttps://pcdfoundation.org/ - | |
PCD Support UKhttps://pcdsupport.org.uk/ United Kingdom | |
Running On Airhttps://runningonair.net/ - | |
Institution | |
Instituto nacional cardio pulmonar hondurashttps://www.facebook.com/InstitutoCardiopulmonarTorax/# Honduras | |
- | |
 | German Lung Foundation - Deutsche Lungenstiftung e. V.https://www.lungenstiftung.de/ Germany |
 | Hong Kong Lung Foundationhttp://hklf.org/ China |
 | NTM Info & Researchhttps://ntminfo.org/ United States of America |
Patient & Lung Health Organisations | |
 | Alpha-1 Europe Alliancehttps://alpha1europe.org/ - |
 | Alpha-1 UKhttps://alpha1.org.uk/ United Kingdom |
 | Alpha1 Deutschland e.V.https://alpha1-deutschland.org/ Germany |
 | Asociación Alfa-1 de Españahttps://alfa1.org.es/ Spain |
 | Asociación Española de Pacientes y Cuidadores con Bronquiectasiashttps://www.linkedin.com/company/aebropacientes?trk=public_post_feed-actor-name Spain |
 | Aspergillosis Trusthttps://www.aspergillosistrust.org/ - |
 | Associação Brasileira de Discinesia Ciliar Primáriahttps://dcpbrasil.org/ Brazil |
 | Associazione Italiana Bronchiettasiehttps://bronchiettasie.org/ Italy |
 | Asthma + Lung UKhttps://www.asthmaandlung.org.uk/ United Kingdom |
 | Belgian Lung Foundationhttps://belgian-lungfoundation.be/en/lung-fact/introduction/ Belgium |
 | Bronchiectasis and NTM Associationhttps://www.bronchiectasisandntminitiative.org/ United States of America |
 | Bronchiektasen e.V. Deutschlandhttps://bronchiektasen.org/ Germany |
 | Cure4 Cystic Fibrosishttps://www.cure4cf.org/ Australia |
 | Cystic Fibrosis Australiahttps://www.cysticfibrosis.org.au/ Australia |
 | Federación Española de Asociaciones de Pacientes Alérgicos y con Enfermedades Respiratoriashttps://fenaer.es/ Spain |
 | Global Allergy & Airways Patient Platformhttps://gaapp.org/ - |
 | Kartagener Syndrom & PCD e.V.https://www.pcd-ks.info/ Germany |
 | Latin Health Leadershttps://latinhealthleaders.org/ - |
 | Linshom - The Association for Lung Patients in Israelhttps://lungs.org.il/ Israel |
 | Lung Foundation Australiahttps://lungfoundation.com.au/ Australia |
 | MNT Mon Poumon Mon Airhttps://www.mntmonpoumonmonair.org/ France |
 | PCD Foundationhttps://pcdfoundation.org/ - |
 | PCD Support UKhttps://pcdsupport.org.uk/ United Kingdom |
 | Running On Airhttps://runningonair.net/ - |
Partners
The Association and Patient Village has been realized thanks to the Commitment of Prof. James Chalmers, Prof. Shteinberg and the WBC Co-Chairs, Prof. Blasi and Prof. Aliberti.
ELF strongly supported the APV realization together with the following PAGs and Association: on behalf of the WBC Community we express them our gratitude for the commitment and support.
Thanks to the WBC major partner for the APV realization
