Association and Patient Village
Association and Patient Village
Join us at the Association & Patient Village – a dedicated space where you can discover patient advisory groups, connect with supportive communities, and learn about initiatives designed to improve your daily life and care.
We will soon share the exhibition plan along with the list of participating associations. Stay tuned for further information.
Endorsements
Endorsements
Organising association | |
European Bronchiectasis Registry - EMBARChttps://www.bronchiectasis.net/ United Kingdom of Great Britain and Northern Ireland | |
In association with | |
Biomedical Research in Endstage And ObsTructive Lung Disease Hannoverhttps://www.breath-hannover.de/en/nc.html Germany | |
Hannover Medical Schoolhttps://www.mhh.de/en/ - | |
The Prospective German Non CF Bronchiectasis Patient Registryhttps://bronchiektasen-register.de - | |
Programme partners | |
Association of Chartered Physiotherapists in Respiratory Carehttps://www.acprc.org.uk/ United Kingdom of Great Britain and Northern Ireland | |
Associazione Riabilitatori dell’Insufficienza Respiratoriahttps://www.arirassociazione.org/ - | |
Beat-PCDhttp://beat-pcd.squarespace.com United Kingdom of Great Britain and Northern Ireland | |
Bronchiektasen e.V. Deutschlandhttps://bronchiektasen.org/ Germany | |
Child-BEAR-Nethttps://www.improvebe.org/ - | |
ERN-LUNGhttps://ern-lung.eu/ - | |
European Lung Foundationhttps://europeanlung.org/en/ - | |
German Respiratory Society - DGPhttps://www.pneumologie.de/en Germany | |
Gesellschaft für Pädiatrische Pneumologie e.V. - GPPhttps://www.paediatrische-pneumologie.eu/ Germany | |
Non-Tuberculous Mycobacteria Network European Trialsgrouphttps://www.ntmnet.org/ Belgium | |
Sociedad Espanola de Neumologia y Cirugia Toracicahttps://separ.es/ Spain | |
Société de Pneumologie de Langue Française - SPLFhttps://splf.fr/ France | |
Endorsing partners | |
Association of Respiratory Nurseshttps://arns.co.uk/ Australia | |
Austrian Society of Pneumology - ÖGPhttps://www.ogp.at/ Austria | |
BE-Chinahttp://www.chinabronchiectasis.com/ China | |
Bronchiectasis and NTM Associationhttps://www.bronchiectasisandntminitiative.org/ United States of America | |
Canadian Thoracic SocietyCanada | |
European Cystic Fibrosis Societyhttps://www.ecfs.eu/ - | |
German Lung Foundation - Deutsche Lungenstiftung e. V.https://www.lungenstiftung.de/ Germany | |
Indian Bronchiectasis Audit and Research CollaborationIndia | |
Indian Chest Societyhttps://www.myicsorg.net/ India | |
Japanese Respiratory Societyhttps://www.jrs.or.jp/ Japan | |
KMBARCRepublic of Korea | |
Lung Foundation Australiahttps://lungfoundation.com.au/ Australia | |
Pan African Thoracic Societyhttps://panafricanthoracic.org/ - | |
Società Italiana per le Malattie Respiratorie Infantilihttps://www.simri.it/ Italy | |
South African Thoracic Societyhttps://pulmonology.co.za/ South Africa | |
The UK bronchiectasis network and biobankhttps://bronchiectasisuk.hicservices.dundee.ac.uk/ United Kingdom of Great Britain and Northern Ireland | |
Endorsing associations | |
Asociación Argentina de Medicina Respiratoriahttps://www.aamr.org.ar/ Argentina | |
Asociación Hondureña de Neumología y Cirugía de Tóraxhttps://www.facebook.com/p/Asociaci%C3%B3n-Hondure%C3%B1a-de-Neumolog%C3%ADa-y-Cirug%C3%ADa-del-T%C3%B3rax-100063552093445/ Honduras | |
Association des Jeunes Pneumologueshttps://ajpo2.org/www/ France | |
Austrian Society of Internal Medicinehttps://www.oegim.at/ Austria | |
Bangladesh Society of Allergy & ImmunologyBangladesh | |
Belgian Respiratory Societyhttps://belgianrespiratorysociety.be/fr Belgium | |
Bronchiectasis in African Children: Prevalence, Aetiology and Clinical spectrum- | |
Deutsche Gesellschaft für Allergologiehttps://dgaki.de/allgemeiner-kongresskalender Germany | |
Ethiopian Thoracic Societyhttps://ethiopianthoracicsociety.org/ Ethiopia | |
European Forum for Research & Education in Allergy & Airways Diseaseshttps://www.euforea.org/ - | |
French Cystic Fibrosis Society - Société Française de la Mucoviscidosehttps://muco-cftr.fr/la-societe-francaise-de-la-mucoviscidose/ France | |
German Society of Allergologyhttps://aeda.de/ Germany | |
Groupe d’Endoscopie Thoracique et Interventionnel Francophone- | |
Hellenic Thoracic Societyhttps://www.hts.org.gr/ Greece | |
Hong Kong Lung Foundationhttp://hklf.org/ China | |
Hong Kong Thoracic Societyhttps://hkts.hk/ China | |
Indian Association for Bronchologyhttps://www.iabronchology.org/ India | |
Instituto nacional cardio pulmonar hondurashttps://www.facebook.com/InstitutoCardiopulmonarTorax/# Honduras | |
International Primary Care Respiratory Grouphttps://www.ipcrg.org/ - | |
Irish Thoracic Societyhttp://irishthoracicsociety.com/ Ireland | |
Israel Society of Pulmonologyhttp://www.ipus.org.il/ Israel | |
Japanese Society of Pediatric Pulmonologyhttps://jspp1969.jp/ Japan | |
Macedonian Respiratory Societyhttp://makrespir.mk/Default.aspx?lng=2 - | |
Malaysian Thoracic Societyhttps://www1.mts.org.my/ Malaysia | |
NTM Info & Researchhttps://ntminfo.org/ United States of America | |
NTM Network UKhttps://www.ntmnetworkuk.com/ United Kingdom of Great Britain and Northern Ireland | |
Palestinian Thoracic Societyhttps://palthorax.org/ - | |
Physio Austriahttps://www.physioaustria.at/ Austria | |
Pulmonary Hypertension Association Europehttps://www.phaeurope.org/ - | |
Scottish Thoracic Societyhttps://www.scottishthoracicsociety.org.uk/ United Kingdom of Great Britain and Northern Ireland | |
Sociedad de Medicina Interna del Uruguayhttps://medicinainterna.org.uy/ Uruguay | |
Sociedad Peruana de Neumologiahttps://www.spneumologia.org.pe/ - | |
Sociedad Uruguaya de Neumologíahttps://suneumo.org Uruguay | |
Sociedade Paulista de Pneumologia e Tisiologiahttps://sppt.org.br/ - | |
Sociedade Portuguesa de Medicina Internahttps://www.spmi.pt/ Portugal | |
Società Italiana di Malattie Infettive e Tropicalihttps://www.simit.org/ Italy | |
Società Italiana di Pneumologiahttps://www.sipirs.it/ Italy | |
Società Italiana per lo studio della Fibrosi Cisticahttps://www.sifc.it/ Italy | |
Societatea Română de Pneumologiehttps://www.srp.ro/ Romania | |
The Japanese Society for Tuberculosis and Nontuberculous Mycobacteriosishttps://www.kekkaku.gr.jp/ Japan | |
Turkish Respiratory Societyhttps://solunum.org.tr/eng/ Türkiye | |
Turkish Thoracic Societyhttp://www.toraks.org.tr/en/ Türkiye | |
Vietnam Respiratory Societyhttps://hoihohapvietnam.org/ Viet Nam | |
Patient advocacy groups | |
Alpha-1 Europe Alliancehttps://alpha1europe.org/ - | |
Alpha-1 UKhttps://alpha1.org.uk/ United Kingdom of Great Britain and Northern Ireland | |
Alpha1 Deutschland e.V.https://alpha1-deutschland.org/ Germany | |
Asociación Alfa-1 de Españahttps://alfa1.org.es/ Spain | |
Aspergillosis Trusthttps://www.aspergillosistrust.org/ - | |
Associação Brasileira de Pacientes de Discinesia Ciliar Primaria (DCP)https://dcpbrasil.org/ Brazil | |
Associazione Italiana Bronchiettasiehttps://bronchiettasie.org/ Italy | |
Asthma + Lung UKhttps://www.asthmaandlung.org.uk/ United Kingdom of Great Britain and Northern Ireland | |
Belgian Lung Foundationhttps://belgian-lungfoundation.be/en/lung-fact/introduction/ Belgium | |
Cure4 Cystic Fibrosishttps://www.cure4cf.org/ Australia | |
Cystic Fibrosis Australiahttps://www.cysticfibrosis.org.au/ Australia | |
Federación Española de Asociaciones de Pacientes Alérgicos y con Enfermedades Respiratoriashttps://fenaer.es/ Spain | |
Global Allergy & Airways Patient Platformhttps://gaapp.org/ - | |
Kartagener Syndrom & PCD e.V.https://www.pcd-ks.info/ Germany | |
Latin Health Leadershttps://latinhealthleaders.org/ - | |
MNT Mon Poumon Mon Airhttps://www.mntmonpoumonmonair.org/ France | |
PCD Foundationhttps://pcdfoundation.org/ - | |
PCD Support UKhttps://pcdsupport.org.uk/ United Kingdom of Great Britain and Northern Ireland | |
Running On Airhttps://runningonair.net/ - | |
- | |
 | French Cystic Fibrosis Society - Société Française de la Mucoviscidosehttps://muco-cftr.fr/la-societe-francaise-de-la-mucoviscidose/ France |
 | German Lung Foundation - Deutsche Lungenstiftung e. V.https://www.lungenstiftung.de/ Germany |
 | Hong Kong Lung Foundationhttp://hklf.org/ China |
| NTM Info & Researchhttps://ntminfo.org/ United States of America |
Patient Advocacy Groups | |
 | Alpha-1 Europe Alliancehttps://alpha1europe.org/ - |
 | Alpha-1 UKhttps://alpha1.org.uk/ United Kingdom of Great Britain and Northern Ireland |
 | Alpha1 Deutschland e.V.https://alpha1-deutschland.org/ Germany |
 | Asociación Alfa-1 de Españahttps://alfa1.org.es/ Spain |
 | Aspergillosis Trusthttps://www.aspergillosistrust.org/ - |
 | Associação Brasileira de Pacientes de Discinesia Ciliar Primaria (DCP)https://dcpbrasil.org/ Brazil |
 | Associazione Italiana Bronchiettasiehttps://bronchiettasie.org/ Italy |
 | Asthma + Lung UKhttps://www.asthmaandlung.org.uk/ United Kingdom of Great Britain and Northern Ireland |
 | Belgian Lung Foundationhttps://belgian-lungfoundation.be/en/lung-fact/introduction/ Belgium |
 | Bronchiectasis and NTM Associationhttps://www.bronchiectasisandntminitiative.org/ United States of America |
 | Bronchiektasen e.V. Deutschlandhttps://bronchiektasen.org/ Germany |
 | Cure4 Cystic Fibrosishttps://www.cure4cf.org/ Australia |
 | Cystic Fibrosis Australiahttps://www.cysticfibrosis.org.au/ Australia |
 | Federación Española de Asociaciones de Pacientes Alérgicos y con Enfermedades Respiratoriashttps://fenaer.es/ Spain |
 | Global Allergy & Airways Patient Platformhttps://gaapp.org/ - |
 | Kartagener Syndrom & PCD e.V.https://www.pcd-ks.info/ Germany |
 | Latin Health Leadershttps://latinhealthleaders.org/ - |
 | Lung Foundation Australiahttps://lungfoundation.com.au/ Australia |
 | MNT Mon Poumon Mon Airhttps://www.mntmonpoumonmonair.org/ France |
 | PCD Foundationhttps://pcdfoundation.org/ - |
 | PCD Support UKhttps://pcdsupport.org.uk/ United Kingdom of Great Britain and Northern Ireland |
 | Running On Airhttps://runningonair.net/ - |
Partners
The Association and Patient Village has been realized thanks to the Commitment of Prof. James Chalmers, Prof. Shteinberg and the WBC Co-Chairs, Prof. Blasi and Prof. Aliberti.
ELF strongly supported the APV realization together with the following PAGs and Association: on behalf of the WBC Community we express them our gratitude for the commitment and support.
Thanks to the WBC major partner for the APV realization
